Information sheet for study participants PARTICIPA
PARTICIPA is a project led by the Institut Guttmann in collaboration with the social entities of the Social and Participation Council of the institution, which has a multidisciplinary team of professionals and an Advisory Group made up of professionals and representatives of the associative sector, as well as experts of the academic field.
The main objective of the study is to identify the factors that make it difficult and / or facilitate the participation in society of people with disabilities on equal terms with the rest of the citizenry.
To achieve this goal, we suggest that you participate as a volunteer in the study. Their participation would consist of answering a series of questionnaires related to social participation from their computer or mobile phone, through their private profile, or on the Initiative’s website.
As part of the study, the researchers will periodically provide you with information and recommendations about your rights; as well as resources, services or general information of interest to promote the participation in society of all people under equal conditions.
Your participation in the study is and will be completely voluntary, and you can decide not to participate or change your decision to do so, withdrawing your consent at any time, without the need to give any justification or explanation in this regard.
Although we ask that you read this document carefully, do not hesitate to ask any questions or clarifications you may need through the email firstname.lastname@example.org
Through the questionnaires, you will be asked for information regarding:
- Socio-demographic data, such as your age or place of residence.
- Socio-economic aspects, such as their level of studies or employment situation.
- Information regarding their participation in society in different areas of life.
- Information on obstacles and / or factors promoting their social participation.
The study does not imply any associated physical or psychological risk for you. Your answers to the questionnaires will not pose any risk to you or have consequences related to your health.
It is likely that you will not receive any direct benefit from participating in this study. However, we hope that participation will allow you to raise awareness about the aspects that can benefit the participation in society of people with disabilities. From the scientific point of view, we hope that the results obtained with this research provide relevant information on what barriers and facilitators are determining factors for the participation in society of people with disabilities on equal terms with the rest of the citizenry.
The research team of the project assures you that all information will be stored and managed in a secure and confidential manner, complying with the provisions of current legislation on the treatment of personal data protection. Regarding the protection of personal data, the project is governed by current regulations at national and European level. The necessary security, encryption, pseudo-anomization and anonymization techniques will be applied to preserve the privacy of participating users. Compliance with all the requirements established by Organic Law 3/2018, of December 5, on the Protection of Personal Data and guarantee of digital rights, and REGULATION (EU) 2016/679 of the European Parliament and Council of April 27, 2016 regarding the protection of natural persons with regard to the processing of personal data and the free circulation of these data.
The data collected in the PARTICIPA project will only be accessible by authorized persons, and will not be transferred in any case to third parties. In this sense, the project data will be collected strictly as necessary, solely for the purposes of the project, and will be destroyed when it is no longer necessary for these purposes. If any participant wishes to verify what personal data is stored, or what has been modified, corrected or eliminated, a contact information point will respond to these requests.
The information collected will be stored electronically and stored only on hardware located in a physically secure environment with strictly controlled access and appropriate environmental controls. The databases containing personal information will not be publicly visible on the Internet, but will be hidden behind firewalls; and access will only be possible through gateways specifically enabled for it. Portable storage media will not be used for the storage of personal data.
We also want to specify that all information is collected for scientific purposes only, and that it will never be released to third parties for commercial or advertising purposes. In addition, when research results are published or discussed at scientific conferences, information that could reveal your identity will never be included.
In the event that you decide to stop participating in the study, at the time and for the reason that you consider, you may interpose the right to withdraw your data, if you consider it necessary.
You can request information related to the research project at any time using the email email@example.com
The photographs of people displayed on the website have been taken with their consent or, in the case of children, that of their parents or guardians.
This website does not contain advertising or receive advertising funding and is self-funded.